Posts

A crazy moment in a crazy journey May 30, 2024
Marching forward onto new terrain Dec 5, 2023
Mid-year update Jun 1, 2023
Another year of progress, in all its complexity Nov 29, 2022
Guidance on genetic counseling in prion disease Jul 28, 2022
Prion Alliance mid-year update 2022 Jun 7, 2022
10 years on Dec 9, 2021
Prion Alliance mid-year update 2021 Jun 7, 2021
Ionis announces new drug candidate, same commitment to prion disease Apr 7, 2021
End-of-the-year update and fundraiser Dec 3, 2020
Prion Alliance mid-year update Jul 16, 2020
Prion research in the time of COVID-19 Apr 21, 2020
Our progress against prion disease in 2019 Dec 2, 2019
Antisense oligonucleotides effective against prion disease in mice Aug 22, 2019
Donations matched 1:1 to $100,000 in honor of our PhDs May 1, 2019
End-of-the-year update 2018 Dec 3, 2018
Developing an antisense drug for prion disease Jul 9, 2018
Mid-year update Jun 11, 2018
Preventing prion disease: our progress in 2017 and how you can help Nov 28, 2017
Prion Registry: an online tool to connect patients, families, and researchers Nov 10, 2017
Prion Alliance honored with Research Models in Drug Discovery Award Sep 26, 2017
Prion Alliance sponsors MGH research study Jul 19, 2017
Five years on Dec 9, 2016
Sonia speaks with President Obama about precision medicine Feb 25, 2016
New study quantifies genetic prion disease risk Jan 20, 2016
Prion Alliance swag has landed Oct 14, 2015
Highlights of Prion2015 for patients and families Jun 11, 2015
Sonia Vallabh receives Graduate Research Fellowship from the National Science Foundation Mar 31, 2015
Eric and Sonia featured in The Atlantic Feb 5, 2015
Sonia Vallabh on Nightly Business Report Nov 19, 2014
Prion Alliance talk at Partnering for Cures 2014 Nov 19, 2014
Crowdsourced genetics at ASHG2014 Oct 22, 2014
No anticipation in E200K prion disease Oct 2, 2014
Proteinaceous Infectious Optimism at Prion2014 Jul 15, 2014
Prion2014 recap Jun 22, 2014
When will treatments be available for prion disease? Mar 3, 2014
What are the potential treatments for prion disease? Feb 4, 2014
Donating skin to create personalized stem cells Jan 18, 2014
Happy 2014 Jan 1, 2014
End of the year goal reached! Dec 16, 2013
What does it mean to have a genetic prion disease? Dec 9, 2013
Donations matched 1:1 until year's end goal Dec 9, 2013
What are human prion diseases? Dec 2, 2013
What are prions? Nov 26, 2013
Microryza project closes at $17,217 Sep 28, 2013
Here's what's next Sep 27, 2013
GSS study funded! Now fundraising for FFI and E200K Sep 17, 2013
Yes, I really want to know Sep 4, 2013
FFI and E200K mice arrive in U.S. Aug 23, 2013
Support our project to test anle138b against genetic prion disease Aug 15, 2013
Highlights from the 2013 CJD Family Foundation Conference Jul 31, 2013
Cannabidiol for prion disease? Not so fast. Jun 9, 2013
Highlights of Prion2013 Jun 2, 2013
Astemizole and anle138b: no "effective therapy" yet, but lots to be optimistic about May 7, 2013
Reflections on the GET2013 conference Apr 26, 2013
Rare Disease Challenge recap: no $10K, but plenty of other good things Mar 15, 2013
Vote for us to win the Rare Disease Challenge Feb 28, 2013
Prion Alliance finalists in Rare Disease Challenge Feb 28, 2013
Our story, recurring donations and recent updates Jan 22, 2013
Happy new year and thank you Jan 2, 2013
40% of the way there Dec 28, 2012
20% of the way there Dec 22, 2012
Donations to Prion Alliance matched 1:1 through end of 2012 Dec 20, 2012
Prion Alliance partners with all-star team for Rare Disease Challenge Dec 17, 2012
New links to Parkinson's spur interest in prion diseases Dec 10, 2012
Prion Alliance launches first fundraising campaign Nov 30, 2012
Prion Alliance seeking research partners for Rare Disease Challenge Nov 11, 2012
Prion Alliance receives 501(c)(3) status Nov 11, 2012
CureFFI.org is back Nov 11, 2012
Welcome to PrionAlliance.org Oct 23, 2012